Ricky Durkin

6:30am - 10:00am

Email the studio

Milky

Just The Way You Are

Listen Live

Fundraiser set to provide sensory equipment for Harrogate girl with rare condition

Tuesday, 2 July 2024 06:40

6-year-old Ivy Grace has a rare genetic medical condition.

A fundraising campaign launched to support a young Harrogate girl with a rare genetic condition looks set to reach its goal.

6-year-old Ivy Grace was born with a rare genetic medical condition called Propionic Acidemia and is one of only a few children diagnosed every year in the UK.

Unfortunately, this can't be cured and reduces her life expectancy.

Due to her condition, Ivy Grace requires a feeding tube and regular medication and has spent the majority of her life in hospital due to respiratory issues and cardiac arrests.

But a fundraising campaign that aims to fund sensory equipment and a defibrillator has raised more than £12,400 - just shy of its goal.

Ivy has been on the waiting list for a liver transplant for 18 months which doctors hope may help her condition and long-term prognosis.

Just 6 weeks ago, Ivy Grace received a donor's liver and went through an 11-hour surgery.

Her parents Carl and Philippa said:

“We hope this new liver will be a turning point for her and we are extremely grateful for any help.

“Ivy’s strength and determination is overwhelming and we are asking for help with setting up a sensory room for her to help with her recovery and especially in this isolation stage as she loves sensory equipment and hopefully will aid in her recovery.”

Carl and Philippa are looking to purchase a new defibrillator to be prepared if Ivy Grave has another cardiac arrest at home.

They will be posting updates on Ivy Grace's condition on their Just Giving page.

If you would like to donate to Ivy Grace for a sensory room and defibrillator, you can donate here.

More from Local News

WATCH: Harrogate school pays tribute to Sir David Attenborough on his 100th birthday

Musical staff and pupils at Brackenfield School in Harrogate have paid tribute through song to Sir David Attenborough on his 100th birthday.
Harrogate teen shines at cheerleading world championships

A Harrogate teenager has helped her team achieve international success at one of the world's biggest cheerleading competitions in the United States.
Wickes plans to open new store on Ripon Road

DIY retailer Wickes has submitted plans to open a new store in Harrogate.
Which famous faces will be attending Your Harrogate's Local Hero Awards?

The Your Harrogate Local Hero Awards are set to return this evening for our biggest night of the year.
Finalists revealed for Knaresborough business awards

Finalists have been announced for the Knaresborough Business Awards 2026 ahead of a ceremony later this year.
Harrogate woman to walk 200km in memory of dad lost to brain tumour

A Harrogate woman is walking 200 kilometres this month to raise money for brain tumour research in memory of her father.
Study names Harrogate among fastest-growing locations in UK for Land Rovers

Harrogate has been identified as one of the UK’s top 10 fastest-growing locations for Land Rover interest, according to new audience data from Land Rover Monthly.
Big Harrogate Sleepout returns for third year to support local charities

The annual Big Harrogate Sleepout is set to return for a third year in support of two local charities.
Harrogate tech firm shortlisted for six national Tech Awards

Harrogate-based Phase 4 Computers has been shortlisted in six categories at the national Tech Awards 2026.
Harrogate MP calls for new powers to close 'cowboy' vape vendors

Harrogate and Knaresborough MP Tom Gordon has called for new powers to close cowboy vendors and restrict illicit vape shops on the high street.
Harrogate law firm donates vital cancer equipment in memory of colleague

In memory of a late colleague, staff from Harrogate family law firm Jones Myers have donated vital equipment to help enhance the wellbeing and comfort of cancer patients.
Local Hero Awards 2026: Meet the finalists

The Your Harrogate Local Hero Awards return this week to shine a light on the selfless, dedicated and inspirational people across the Harrogate district.
Police appeal after man makes 'sexual gestures' in Ripon

Police are appealing for information in relation to a public order that occurred in Ripon city centre.
Yorkshire voters would reject MPs who back 'holiday tax', major poll shows

Over half (54%) of people in Yorkshire oppose the Government's proposed holiday tax, according to a major new poll.
Harrogate charity Horticap hits the road in new electric vehicle

Harrogate horticultural charity Horticap is going even greener after securing sponsorship for a new electric van from developer the Banks Group.
Harrogate IT provider wins prestigious King's Award for Enterprise

Harrogate-based IT provider Techbuyer has been recognised with a King’s Award for Enterprise for Sustainable Development.
Funding secured for new men's mental health programme in Harrogate district

A new partnership programme designed to support men's mental health across Harrogate district has secured funding from David Skaith, Mayor of York and North Yorkshire.
Knaresborough Castle repairs finally set to get underway

Reparation and restoration works are finally set to get underway at Knaresborough Castle, according to a local councillor.
Opening date delayed for new-look Furlong and Furrow

The opening of the newly rebranded Furlong and Furrow near Ripon has been delayed by an extra week.
Boutique women's fashion brand opens new Harrogate store

A boutique women’s fashion brand has opened its doors in Harrogate town centre.